Iowa Branch of the Ehlers-Danlos National Foundation: Information and Support for Iowa Families with Ehlers-Danlos Syndrome
Home Mission News Types of EDS EDS Facts
Membership Form Members Area Calendar Photo Album Links


Welcome

Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility.

Together...We will find a brighter day

The Iowa EDNF welcomes you to our website. Our support group meets the 3rd Saturday of every other month in January, March, May, July, September, and November (please check the calendar for the specific dates) to give support to members who have Ehlers Danlos Syndrome and to educate others about this connective tissue disorder. We are affilliated with the national EDNF organization. If you have any questions, please feel free to send an email to the chapter contact found on the bottom of the Homepage. Thank you for visiting our site and for any input that you might have to make this a better website to meet the needs of those who have EDS, their families, friends, and supporters.

The Officers for the Iowa EDNF are:
Title Name Email Address
President Holly rngineer@mchsi.com
Vice President Susan S.  
Secretary Robin robingaile@hotmail.com
Treasurer Deb pookysma@home.com
Medical Advisors:
Dr. Marcia Willing, MD
Ann Muilenberg, RN
Division of Medical Genetics at the University of Iowa Hospitals & Clinics
Phone: 800-260-2065
Ann's email: ann-muilenburg@uiowa.edu


Home | Mission | News | Types of EDS | EDS Facts
Membership Form | Members Area | Calendar | Photo Album | Links

Copyright© 2002, Iowa EDNF. All Rights Reserved
Website designed, hosted and sponsored by:KMF Design