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The facts presented on these pages were compiled as of October 2000 from the
national headquarters of the Ehlers-Danlos National Foundation in Los Angeles,
California by Darlene A. Clarke, RN, MSN; Karen Skrocki Czerpak, RN; & Linda
Newmann-Potash, RN, MN.
Individuals with EDS have a defect in their connective tissue, the tissue which
provides support to many body parts, such as the skin, muscles, and ligaments.
The fragile skin and unstable joints found in EDS are the result of faulty collagen.
Collagen is a protein which acts as a "glue" in the body, adding strength
and elasticity to connective tissue. There are six major types of EDS. The different
types of EDS are classified according to their manifestations of signs and symptoms.
Each type of EDS is a distinct disorder that "runs true" in a family.
This means that an individual with Vascular Type EDS will not have a child with
Classical Type EDS.
CONCLUSION
This simplified classification system will facilitate an accurate diagnosis
of Edhlers-Danlos syndrome and allow a clearer distinction of disorders that overlap
with EDS. It is important to note that each type of EDS is distinct. If you have
one type of EDS, you cannot develop another type. However, individuals with the
same type of EDS may have slightly different manifestations because each of us
is a unique person.
For more information, visit the National EDNF
headquartered in Los Angeles CA.
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